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- Brief communication Validation of the Korean Version of the Huntington’s Disease Quality of Life Battery for Carers
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Hee Jin Chang1, Eungseok Oh1
, Won Tae Yoon2, Chan Young Lee3, Kyum-Yil Kwon4, Yun Su Hwang5, Chaewon Shin6, Jee-Young Lee7 -
DOI: https://doi.org/10.14802/jmd.24217 [Accepted]
Published online: December 30, 2024
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1Department of Neurology, Chungnam National University College of Medicine, Chungnam National University Hospital, Daejeon, Korea
2Department of Neurology, Kangbuk Samsung Hospital, Sungkyunkwan University School of Medicine, Seoul, Korea
3Department of Neurology, Ewha Womans University Mokdong Hospital, Ewha Womans University College of Medicine, Seoul, Korea
4Department of Neurology, Soonchunhyang University Seoul Hospital, Seoul, Korea
5Department of Neurology, Jeonbuk National University Medical School and Hospital, JeonJu, Korea
6Department of Neurology, Chungnam National University Sejong Hospital, Chungnam National University College of Medicine, Sejong, Korea
7Department of Neurology, Seoul National University College of Medicine, Seoul Metropolitan Government-Seoul National University Boramae Medical Center, Seoul, Korea
2Department of Neurology, Kangbuk Samsung Hospital, Sungkyunkwan University School of Medicine, Seoul, Korea
3Department of Neurology, Ewha Womans University Mokdong Hospital, Ewha Womans University College of Medicine, Seoul, Korea
4Department of Neurology, Soonchunhyang University Seoul Hospital, Seoul, Korea
5Department of Neurology, Jeonbuk National University Medical School and Hospital, JeonJu, Korea
6Department of Neurology, Chungnam National University Sejong Hospital, Chungnam National University College of Medicine, Sejong, Korea
7Department of Neurology, Seoul National University College of Medicine, Seoul Metropolitan Government-Seoul National University Boramae Medical Center, Seoul, Korea
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Corresponding author:
Eungseok Oh, Tel: +82-42-280-7934, Fax: +82-42-252-7654,
Email: massive@cnuh.co.kr
Jee-Young Lee, Tel: +82-2-870-2476, Fax: +82-2-831-2826,
Email: wieber04@snu.ac.kr
Received: 21 October 2024 • Revised: 22 November 2024 • Accepted: 20 December 2024
Abstract
Objectives
The Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) evaluates caregiver quality of life. This study aims to develop and validate the Korean version (K-HDQoL-C) to assess the burden on Korean caregivers of HD patients.
Methods
Nineteen HD caregivers (7 females, mean age 55.4±14.6 years) participated. The K-HDQoL-C, a translation of the English version, consisted of demographic information, caring aspects, life satisfaction, and feelings about life. It was administered twice, two weeks apart. Internal consistency was evaluated using Cronbach’s α, and test-retest reliability was assessed with intraclass correlation coefficients. The relationship with the Zarit Burden Interview-12 (ZBI-12) was analyzed.
Results
Internal consistencies of K-HDQoL-C were 0.771 (part 2), 0.938 (part 3), and 0.891 (part 4). Test-retest reliability ranged from 0.908 to 0.936. Part 3 negatively correlated with ZBI-12, and part 4 positively correlated (R = -0.780, 0.923; p < 0.001).
Conclusion
The K-HDQoL-C effectively evaluates challenges faced by HD caregivers, particularly in care aspects and life satisfaction.
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